Improving end of life care in Waltham Forest

We would like to hear your feedback on how we can improve services for people at the end of their lives. Please read this document and then fill out this online survey

If you would like to receive a survey by post please contact janice.richards@walthamforestccg.nhs.uk / 020 3688 2607.

All feedback must be received by 13 December 2016. It will be used to help decide what community support and hospice care is needed for people at the end of their lives.

About end of life care services

In Waltham Forest, more people who are nearing the end of their life die in hospital than any other borough in London. We want to people to have more options so they can choose to die in the place they prefer.

Dr Anwar Khan, GP and Chair of the CCG, says: “Someone who is nearing the end of their life should be able to choose where they want to die. Some people prefer to die in hospital, but other people want to be at home with their family and friends, or in a hospice. They should also be given spiritual and psychological support, and tailored pain management to help them as much as possible during this very difficult time.”

Around 1,500 people die in Waltham Forest each year, and more than 1,100 (74%) of them end their life in hospital. The London average is 63.7%, and for England it is 56.7%.

“Part of the reason so many people die in hospital is because Waltham Forest’s palliative care centre (the Margaret Centre) is based within Whipps Cross Hospital. In most other parts of the country, palliative care centres are based outside of hospital,” says Dr Khan.

“There are also only 418 patients on the Waltham Forest palliative care register, but we think that should be closer to 1,050. We need to understand why people aren’t being registered.”

The CCG is particularly looking for feedback from people who have who have experience of end of life services, but is also interested in hearing what other people who haven’t used the services might think.