Transforming care to improve life for people with learning disabilities

Plans are being put in place to improve life for people with learning disabilities and those with autism, who have behaviour that might be described as challenging.

NHS Waltham Forest Clinical Commissioning Group (CCG) is working with three other clinical commissioning groups (City & Hackney, Newham and Tower Hamlets) through the Inner North East London Transforming Care Partnership to make the improvements.

It follows the Winterbourne View inquiry that followed a Panorama investigation, into the treatment of people with learning disabilities and behaviour that might be described as challenging; at a private hospital (Winterbourne View) in South Gloucestershire.

The inquiry found these most vulnerable people often living in institutional and poor quality, unsafe services, far from family and friends.

A number of events have been held to find out what is needed and the Transforming Care Partnership has spoken to families, support providers and a wide range of staff, as well as experts from outside our area, to help form the local Transforming Care plan.

Waltham Forest CCG’s Chair Dr Anwar Khan said: “We would like to thank everyone for their time, frankness and ideas. Our plan is to give the right support, in the right place, at the right time for each person.

“In Waltham Forest, we at the CCG are now working closely with the London Borough of Waltham Forest to put robust plans in place and with hospital patients to support them as they are discharged from hospital.

“We are also starting to work with providers of care so that they are better equipped to support people in the community.”

The Transforming Care plan will help to:

  • Strengthen local services so they have the ability and capacity to cater for people in the borough
  • Develop paid staff and support families to increase resilience, competence and confidence in supporting people with complex behaviour
  • Involve people much more in decisions about their support
  • Offer personal health budgets so people can take control of their own support services where they wish to
  • Catch people before they fall, and make sure we offer support before people experience a crisis
  • Improve access to housing for this group of people
  • Help to steer people through critical periods of change, and make services easier to access.

As a result, 20% less people will end up in hospital and less people will be leaving to live in colleges and residential homes away from the places and people they know and call home.

If you would like to be involved in the Transforming Care work in Waltham Forest, please contact Lindy.Shufflebotham@walthamforestccg.nhs.uk

You can read a summary of our Transforming Care Plan here.